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A MOOC about social media in healthcare: opportunities & challenges
This post is about a specific course, the concept behind its technology, and what it means for the future of learning. For people who know about MOOCs this will be old news; for people who don’t, I...
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Call for entries: four patient innovators will win a trip to Amsterdam! Are...
Have you done something useful with your medical data to help manage your health? (Or someone else’s) Perhaps others would find it useful… either your exact tool or your general method! In any case,...
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FHIR #DevDays announces Patient Innovator Track finalists: two companies, two...
The organizers of the FHIR #DevDays conference next month have announced the four finalists who will come to Amsterdam to present their ideas to a panel of judges. I’ll copy/paste here from the...
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And the Patient Innovation winner is …
At the closing session Friday in Amsterdam, Grahame Grieve (“the father of FHIR”) hands a big check (so to speak) to patient John Keyes, creator of BloodNumbers. He created it for his personal use,...
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Tech-savvy patients: enter the “Patient Innovator Track” at FHIR DevDays!
Deadline Friday, May 22: See timeline below, learn more on the track page, then submit your application. Prizes, fame, community! Summary of timeline: Now through Friday, May 22: Fill out the form to...
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A glimpse of how FHIR works, for people who’ve fought to get their data
This is a quick post without a lot of explanation, targeted to perhaps a small number of people but perhaps also intriguing to a lot more. This image is a quick summary of the post below: [What’s...
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#LongCOVID patient researcher Hannah Wei kicks off FHIR DevDays
For two years I’ve blogged about DevDays, the twice-annual software developer conference for the FHIR software standard for health data. November 17-20 was this fall’s edition, and in the opening...
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Question for the diabetes community: should Freestyle readings match finger...
This is an exercise in “peer to peer health advice.” I’m asking for advice, from “the DOC” (diabetes online community) – more on that below. Here’s a message I received from someone who’s really...
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New podcasts and webinars, #2: Harry Glorikian’s “The Future You” (two parts)
I mentioned last week that there’s been an upsurge in people reaching out to carry forward the message we e-patients have been evangelizing for ages. Hallelujah! That post was an interview for the...
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Ethics and barriers: BMJ webinars on patient access to medical records
The BMJ (formerly the British Medical Journal) continues to lead the world in patient & public partnership with clinicians, including more coverage of patient empowerment topics than anyone else I...
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Time to practice what I preach, again: this time it’s glaucoma.
I have a new diagnosis. This post starts with a little history for context. Ten years ago, three years into evangelizing patient engagement based on my kidney cancer story, I posted Time to practice...
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Dump the jive from JPM & VIVE: seek real change with me at NextMed Health
I’m among the advisory vanguard for NextMed Health, and I’m hoping to speak there too. I hope you’ll come. Register here, or email me for a discount code. Daniel Kraft’s events are different. Host...
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FHIR DevDays is rolling … and I can’t wait for my QR patient data!
“DevDays in lights” display at the back of the main room Of the hundreds of conferences I’ve spoken at, none is more fun and relevant to patient empowerment through health data than FHIR DevDays, for...
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Casey Quinlan’s QR code dream starts coming to life – using FHIR!
Regular readers know about “Mighty Casey” [left]: a very outspoken advocate for patient centered care who died in April. As her BMJ obituary said, she notoriously had a QR code tattooed onto her...
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